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Internet Sites:

• Special Child – CHARGE Syndrome
This article includes information on CHARGE Syndrome, its diagnosis and treatment, and personal stories from parents.

• The Family Village Library – CHARGE Syndrome

Discussion Groups:

• CHARGE Syndrome List
The CHARGE Syndrome List is for anyone that has anything to do with a child with CHARGE, parents, caregivers, doctors, therapists and teachers.
Subscribe to this list at the following URL: http://www.geocities.com/Heartland/1220/list.html


• Charge Syndrome Foundation, Inc.
2004 Parkade Boulevard
Columbia, MO 65202-3121
Toll-free: (800) 442-7604
Phone: (573) 499-4694
Contact: Marion Norbury
Marion Norbury (Executive Director): marion@chargesyndrome.org
Meg Hefner (Genetic Counselor): meg@chargesyndrome.org