For Dawn and others with older / adult special needs children,
The frustration is horrible, I know. I understand the problems that come from
these types of situations since my husband is visually impaired and is often
believed to be completely incompetent (even with his degrees in education, physical
education, and visual impairment certification). Much of this is public attitude is
actually ignorance, the rest is "intolerance" of those individuals with special
needs. Both are inexcusable, in my opinion. But we shall educate, right?
While your daughter is an adult, there should still be services available to her
through rehabilitation services in your state. I would definitely check to see
what resources might be available AND find out about a "job coach" --if
possible--to help your daughter to develop those skills that others find they need
from employees. I would also check into programs / businesses that OFFER
employment to disabled / special needs individuals because these businesses often
have developed programs with special individuals who manage them along with job
coaches AND provide support while allowing for employment. Remember that the ADA
will also be a great leverage to help with these types of situations, so check out
what is happening and try to support, document, and defend your daughter's right to
work without fear of termination because of her disability.
I will admit that these programs are rare (and I can see an avenue for future
business ventures here, if others are interested in pursuing this as a "What I
Would Like To Be" later in life), there are some programs out there.
Here are some links to investigate further avenues for help AND I would also
encourage YOU, as the parent, to become actively involved in a parental support
group to help you begin to make the transitions necessary to help your daughter to
become an independent adult--especially later in life when you and your husband are
not there to help. Now is the time to set up financial trust-funds for your
daughter and assign a guardian who will help her to transition throughout life
(perhaps a younger family member, cousin, or friend of the family that you trust
and who is your daughter's age or slightly older). I know you've heard all of this
before (probably as she was attending school), but this is probably the most
difficult time in the lives of special needs adults. Putting the plan in action is
the hardest when you don't have the support that you found (hopefully) when she was
in school. I would definitely seek out those services within your state
(Department of Rehabilitation Services, Department of Human Services, or Department
of Education---at least one of these types of state / federal service divisions
should be able to direct you to services that are available to adults with learning
disabilities / special needs.
Good luck! (Take deep breaths and know that you are not alone....hopefully, there
are some paths that you can take to find the answers!)
http://nisonger.osu.edu/Links.htm
http://www.kidsource.com/kidsource/content4/special.needs.trans.html
http://www.nifl.gov/nifl/ld/bridges/bridges.html
http://ldlink.coe.utk.edu/jobseekers_employers.htm
http://ldlink.coe.utk.edu/service_providers.htm
http://www.thearc.org/
http://adulted.about.com/od/specialneedsassociations/
http://www.familyvillage.wisc.edu/index.htmlx
http://www.google.com/Top/Home/Family/Parenting/Special_Needs_Children/
~Shonda
Shonda Brisco, MLIS
US / Technology Librarian
Fort Worth Country Day School
Fort Worth, TX
sbrisco@fwcds.org
http://www.fwcds.org/campus/libraries/default.asp
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