Fragile X Syndrome

Internet Sites:

* Your Genes, Your Health: Fragile X Syndrome
Provides information on the causes, symptoms, diagnosis, and treatment of Fragile X.
http://vector.cshl.org/ygyh/mason/ygyh.html?syndrome=fragx

* Questions and Answers about Fragile X
This information is provided by the Fraxa Research Foundation.
http://www.fraxa.org/html/about.htm

* The National Fragile X Foundation - Education
Includes information for schools establishing a program for a child with Fragile X Syndrome.
http://www.fragilex.org/html/education.htm

* Carolina Fragile X Project
"This web site is designed to increase public awareness and understanding of young children with fragile X syndrome (FXS)."
http://www.fpg.unc.edu/~fx/
 

Discussion Groups:

* fragilex
A forum for discussion of fragile X syndrome, a single-gene disorder which is the #1 cause of inherited mental retardation.
To subscribe:
  1. Go to: http://listserv.service.emory.edu/Archives/fragilex-l.html
  2. Click on the link for: Join or leave the list
Archives: http://listserv.service.emory.edu/Archives/fragilex-l.html
 

Organizations:

* National Fragile X Foundation
P.O. Box 190488
San Francisco, CA  94119
Tel: 510-763-6030
Toll Free: 1-800-688-8765
Fax: 510-763-6223
E-mail: natlfx@sprintmail.com
http://www.nfxf.org/

* FRAXA Research Foundation, Inc.
45 Pleasant St.
Newburyport, MA 01950
Tel: 978/462-1866
Fax: 978/463-9985
E-mail: info@fraxa.org
http://www.FRAXA.org/